View Full Version : Fibromyalgia
highlander
09-May-07, 00:28
Does anyone else suffer from this illness, if so, do you find that certain things trigger the pain, also what pain relief do you use?
porshiepoo
09-May-07, 08:01
Hi
Yes, I was diagnosed with this a couple of years back. I also have Narcolepsy which may have triggered the whole thing of.
I was diagnosed by a rheumatologist down at Inverness but unfortunately I can't take medication as it would react with the medication I have to take for the Narcolepsy :(
I believe a mild anti depressant is the usual?
As for triggers, could be anything but overdoing anything strenuous is the biggest trigger. Some days you may feel like you could tackle the world (not often granted) so you're tempted to get as much done as posssible before you feel drained again and hurt - don't do it - you'll be laid up for days afterwards.
Incidentally, if you have it do you suffer with numb arms / legs when trying to sleep at night? I have this every single night but from what the doc says this isn't a usual symptom?
Basically I take each day as it comes. I dread people touching me cos it will feel as though i've been hit by a baseball bat, my joints hurt constantly, especially my hips (I have a trapped nerve in my hip at the mo and have to shuffle penguin style), am exhausted more often than not and feel like a complete idiot when my brain gets so foggy I can't do much more than slur at people.
All in all I think it's one of the most awful things to have, especially as people cannot see what you're trying to explain you feel like.
Paris also has this illness.
The dreaded fibro, yes i have it as well . Everything poo says it so true but i find the worst thing is the fibro fog ( forgetting things ) I have to leave notes everywhere, and it can be very embarrassing. The feeling of aches and aching all the time, the shuffling about, It is so hard trying to tell others what its like as you cant see any thing. Yesterday i did some painting and boy do i know today, i will be aching for days now. The thing is your brain tells you you can do things then when you have you pay dear for it . There are so many things i just can't do now. I was diagnosed when i was living in caithness 3 yrs ago but i KNOW i had it a few years before that, i thought i was just getting old LOL I'm 47 this year. Its a vicious circle, constantly feeling weak then on a good day you do something and you pay the price. I feel for you, believe me . Jan x:(
I take tramadol , amitriptyline , and naprosyn for the fibro .
porshiepoo
09-May-07, 09:22
The dreaded fibro, yes i have it as well . Everything poo says it so true but i find the worst thing is the fibro fog ( forgetting things ) I have to leave notes everywhere, and it can be very embarrassing. The feeling of aches and aching all the time, the shuffling about, It is so hard trying to tell others what its like as you cant see any thing. Yesterday i did some painting and boy do i know today, i will be aching for days now. The thing is your brain tells you you can do things then when you have you pay dear for it . There are so many things i just can't do now. I was diagnosed when i was living in caithness 3 yrs ago but i KNOW i had it a few years before that, i thought i was just getting old LOL I'm 47 this year. Its a vicious circle, constantly feeling weak then on a good day you do something and you pay the price. I feel for you, believe me . Jan x:(
I take tramadol , amitriptyline , and naprosyn for the fibro .
Paris could you check out what those actually are for me? I'm on a constant quest to find something that will help that I can take with my other med.
Problem here as well is that some docs don't actually believe in fibro so getting medication for it can be exhausting. It's just about management as far as they're concerned.
I've sent you all a pm, or tried to -never sent a pm to more than one person at a time, so not sure if it will work! :confused
porshiepoo
09-May-07, 17:29
Thanks for that Angela.
I googled those meds anyway and I can't take them :(
crustyroll
09-May-07, 23:46
Hi all,
Can I ask how did you get diagnosed? Obviously I'm assuming by a Rheumatologist but did you have to fight with your doctor to get seen? Did they believe the symptoms and what you were telling them?
I have been feeling like this for quite a few years and lately it's become worse and it's only after chatting to a few people that I'm beginning to think I may have fibromyalgia or something similiar?
I can feel fine for days, then do loads of housework and am shattered then for days after. Most of my muscles ache as well as tendons and some joints. Even holding the hairdryer is a problem as it feels so heavy. Sometimes I just get unexplained pain in various parts of my body :eek:
I have a back problem and have had nerve damage in my right leg but some nights it's so difficult to sleep as both my legs feel horrible.... it's so hard to describe! They don't ache but they are uncomfortable and no matter what position I move into the throbbing pulsing feeling is hard to bare. I can't sleep with my arms straight as they stiffen up and lock and sometimes feel numb. I absolutely cannot sleep on my back with my back problem and if I have unfortunately turned over on my back then my neck suffers!!!
Hell I feel like a wreck that wonders if she's imagening it all and going senile :~(
Edited to say that I am on strong painkillers which I take most days although try not to. The doc reckoned I should just continue to do what I am doing as anti-inflammatories won't make much of a difference to me. I sometimes take painkillers before bed so that I can sleep and then I'm not so bad the next day or don't take tablets and some mornings get up and take hours to feel right.
porshiepoo
10-May-07, 08:13
Poor you Crustyroll, you certainly seem to be going through it.
I got diagnosed by the rheumatologist and yes it was hard to get seen. I'd been going to my doc with these symptoms for years but he kept palming them off as symptoms of Narcolepsy which I knew was wrong. In the end the doc asked me to ask my neurologist when I see him, so I did and he confirmed that some of my problems were not associated with my narcolepsy. I then told the doc this (well the neuro wrote to him too) and then I got the appointment with the rhuematologist who confirmed Fibro.
Like I said before the problem with this illness is that a lot of docs don't believe in it, so even getting an appointment with a specialist can be a hard slog. I was told many a time to go on holiday and 'get over it' [evil] and to be honest the support I've recieved since the disgnosis has been rubbish. Because I can't take medication for it I'm expected to just get on with it!
Fight your doc for an appointment with a specialist - you're well within your rights to insist that you want to see one.
My other symptoms besides the aches and painful joints are: Sensitive areas on certan parts of the body, excessive fatigue, low tolerance to light and noise (noise doesn't hurt physically it just 'hurts' - weird I know), tingly arms and legs, numb arms and legs in fact the list goes on. Do you have any similar symptoms Crustyroll?
Hi all, well i had no problems being referred, it was when we lived in lybster and the GP there was 1st class . Even though i now live in lincolnshire im lucky enough to have a Dr who DOES know about fibro. He told me its like a mixture of ME and MS and when you read up on both illnesses you could think you have either one but its the fibro. If you have all the symptoms go to your GP and ask for a hos appointment, you cant lose out really and at least you will know if you have got it .
And this is to all the orgers on here who have thought i was thick or just didn't know what i was replying to on threads........SORRY but now you know , its not my fault, im not thick i just forget things sometimes and write the wrong things I have fibromyalgia ! jan x
Thank god for the spell check on my pc LOL jan xx
crustyroll
10-May-07, 10:28
Hi Porshiepoo
I am so glad that there other people out there that understand what I am saying, although I wouldn't wish this on anyone!
I've looked on the net and found lists of symptoms and realised that I have felt and experienced quite a few of them but just put it down to my age and being overweight. I am only beginning to realise that at 38 I shouldn't be feeling the aches and pains that I have been. At the moment my main problem is my neck, arms, hands, wrists and back. Last night wasn't too bad, I only woke up about 4 times to turn in bed as I was feeling so uncomfortable in my neck and legs however when I got up this morning I had to take 2 co-codamols 30/500 for the pain in my neck, right arm, hand and an ache in various other parts!!!
Other symptoms I have had are:-
Severe and regular migraines, very sensitive to light, feeling cold and fluish, facial pain (like sinusitis), sensitive to some noises (thought this was me just being daft) with some throbbing in my ears, good long term memory but absolutely crap short-term memory, feeling exhausted but not sleepy, lack of muscle strength and muslces feeling fatigued, shaky, very heavy periods, fibroids, sore heels, achillies tendons, shin splints, sensitive skin (ie not a rash or reaction but skin actually feeling sore to touch), sharp short periods of pain in different areas of my body, mood swings, pms, feeling shaky after doing physical activities and sometimes just basic housework.
The list could go on and on and I know that a lot of the above could be down to other things but I regularly have problems with feeling shaky, tired, sore and having pain which has lead me to believe that I'm not making it up and could it be fibro? I have had the usual blood test for rheumatoid arthritis which came back clear, my ESR level started at 14, went to 18 but haven't got the latest one back yet. The doctors say that normal ranges of ESR fall between 1-20 but who's to say that my range may not have originally been 5? That means that my inflammation level has increased 3-fold?? Am I right in saying that you can have normal ESR levels in Fibro?
What kind of tests did your specialist run? How did they come to the diagnosis of Fibro? I totally agree that doctors are probably the hardest people to convince that there is such a thing as Fibromyalgia as even I have thought that I must be making the symptoms up. I know that there must be something not working correctly when it hurts just to stir a pan o mince!!
Another symptom I have is sensitive parts on my body that hurt when you touch them. I also seem to hurt quite easily and sometimes have a slightly delayed action. The painkillers do help and generally I just get on with things and carry on as normal. I had an episode a few weeks ago and felt like I was coming 'down' with something and had to go to bed, this prompted me to go to the doc again who took blood tests. As usual they came back normal and I was told to carry on as I was doing.
porshiepoo
10-May-07, 11:04
Crustyroll, I have fibroids too. I wonder if this could be related? Although I don't think it's listed as a symptom?
Basically the rheumo takes down all your symptoms then does a test that tells him whereabouts on your body you have sensitive points and whether they're sensitive enough to be fibro. I don't remember what else he did.
Like you I have good long term memory but not so good short term.
Paris, you know as well as I do that your problems are purely down to senility. :lol: Just kidding. Although it would be nice if you answer your blinkin emails woman [evil]
I've had FM for 15 years although I was only officially diagnosed 5 years ago. Mine flares up every now and again and I'm currently having a flare up with lots of pain and sleeplessness.
I had massage therapy for mine (useless) and was put on anti-depressants (more trouble than they were worth) and I don't find any OTC painkillers are much use.
I recently read that anti-oxidants are helpful and you should cut everything good out of your diet (choc, alcohol and an amazingly long list of fruits)
There is a web-site where you can talk to other sufferers but I can't remember the address at the moment...
Pm'd a few of you but there seems to be so many sufferers out there I will post a link, my advice is to read the info on the website below, these people WILL cure you.
www.mickeltherapy.com
Ah!! Hidden disability.
I too suffer from one of the many chronic fatigue syndromes that all seem to share many of the same symptoms. Mine has the grand title of Mitochodrial Encephlo-Myopathy. I can totally emphasise with the previous posts.
CFS is a title that does not do the condition any justice at all. I am not just tired all the time. Do you find everyone always says “we all get tired”?
My tiredness can crush me to a level when I can't stand up, lift a fork to my mouth or even talk.
These are some of my other symptoms:
They all vary and are unpredictable and can change from minute to minute or week to week etc.
My brain is effected often I can't think or make a decision although I am an intelligent person, I used to be a charge nurse. But now, I frequently can't follow conversations or read more than a paragraph with great difficulty. I get confused and think I don't know things that I do, not recognising or misunderstanding words that I words that I am fully conversant with. I also think I have recognised words that I do not know at all. As you can imagine his can lead to a lot of frustration for myself and others around me. When effected I can speak in spoonerism, malapropisms and nonsensical syllables. I know what I want to say but I just can't find it but can't stop the rubbish spewing out. Concentration is poor and my memory effected. Decision making can be very poor. I find focus difficult all in all it is very frustrating because I do not want to spend time vegged out in front of the TV. My mind needs input but the communication links are fouled up.
Sensitivity to light and noise.
Blurring of my vision.
I am always in some level of pain this can be from annoying to intolerable. This can be a low level throb to a sharp burning shooting pain, mainly in my lower limbs and digits in but could be anywhere. I get severe cramps in my arms legs and neck, I am woken up by this which is a horrible, lonely experience. My muscles are often very stiff and I have been described rather impolitely as walking like I have defecated myself (not the word, but you know what I mean). I feel sore to the touch.
Numbness and discomfort all the time but greater at night. Yes I get this also numbness in by legs and forearms (my understanding is it is common to C.F.S.s) and face with pins and needles and feelings as though insects are crawling over me. I also feel a strange uncomfortable feeling, almost as though there is a pressure in my limbs trying to get out, but not quite.
My oral temperature varies between 35.4 and 40 degrees and I sweat like a pig. I get too hot on the outside while my inside is freezing, yuk.
I shake in a debilitating manner when tired.
I can have good days and I can manage my health to some degree by resting heavily prior to an event. and even harder after. I try not to make plans as I let people down. I have great days when I can do things other people do and then feel guilty because I am on. Incapacity benefit and I have a ridiculous work ethic. I have lost my nursing registration due to my inability to study to maintain my profile and I have been medically retired because I could not do the job. I can only see self employment as an option as I can only work when I am functional. Employers don't seem to like unreliable employees who make a load of mistakes, fussy eh!. I am desperately trying t think of something I could do.
Interestingly I am 47 and note that others who have posted are around that age.
I've been writing this since last night. Oh the effort.
I'm not please you others are experiencing similar difficulties, but it does make me feel less isolated.
porshiepoo
10-May-07, 13:10
Didn't realise there were so many other sufferers.
As for age, I'm 35 and although I was diagnosed a couple of years ago my doc records will have me down as having these symptoms for at least 10 years.
Most annoyingly, even though it's very debilitating it's nigh on impossible to get any kind of benefits for it - even though I have Narcolepsy, fibroids & IBS as well. [evil]
We spend years paying taxes and what do we get to show for it - nothing!
A quick thank-you to everyone who has PM'd me!
I feel quite humbled by what some of you are having to contend with :( but it is good to feel less isolated.
My son's girlfriend has ME and for a while I thought I might as well. Then I had a few panicky times thinking it might be MS.
My GP now believes I'm suffering from "peripheral neuropathy" after a serious (indeed life-threatening) illness last year. I contracted pneumonia while in hopital and ended up spending 2 weeks in the limbo of ICU on life support.
Whatever I have now is put down to the pneumonia and the after-effects of ICU, which kept me alive, but at a price I think. The specific illness hasn't been definitely diagnosed however. Because of having been in ICU, I have been followed up and monitored by an ICU nurse and my own GP. Some of the symptoms I have fit with my GP's diagnosis, but I have a lot more that don't :confused I agree with stratman, "tired" does not do justice to the feeling of utter exhaustion, both mental and physical.
When folk ask me how I am, I usually say "I'm fine", because compared with how I was last summer, I am hugely better. But still very far from how I felt before! And some days I'm far from fine, especially if I've overdone it the previous day.
I'm sure most people think I will get "back to normal", which I don't feel is realistic, but obviously I would like to be as well and do as much as I can! However I really need to know what the illness is and how best to manage it.
I will be seeing my GP again in a couple of weeks and will have more blood tests, and I think then we may be able to talk about a referral.
I applied for DLA and got it for a limited period. My son's girlfriend has been turned down, but is awaiting an appeal. If anyone would like some advice about claiming DLA, send me a PM, I may be able to give you some advice...but if in doubt, consult CAB, thay can be a great help.
Hope all of you are having a relatively "good" day out there.
Porshipoo I forgot to mention that I have had some success with Carbamazepine 100mg one time daily for pain control.
Have you read about or have you tried Modafinal being used as a wakefulness promoter in people with CFS ? Apparently an application has been made to NICE to consider a licence. It is used primarily for Narcolepsy so you would have a foot in the door and wouldn't need to wait for such licencing.
porshiepoo
10-May-07, 14:27
Porshipoo I forgot to mention that I have had some success with Carbamazepine 100mg one time daily for pain control.
Have you read about or have you tried Modafinal being used as a wakefulness promoter in people with CFS ? Apparently an application has been made to NICE to consider a licence. It is used primarily for Narcolepsy so you would have a foot in the door and wouldn't need to wait for such licencing.
I actually do take modafinil but because it promotes wakefulness the doc won't let me take anything like the anti depressants for FMS as I would then effectively be on uppers and downers.
Have to say that if it's a choice, I'll take the narcolepsy treatment as I could never go back to those sudden sleep fits again. Having said that, I still have to sleep during the day regularly as the modafinil doesn't work wonders. :(
porshiepoo
10-May-07, 14:36
Just googled 'Modafinil'.
Nice to know that the chances of addiction are 'small'. Guess I must be one of those 'small' numbers of people then. If I miss even one dose then I'm depressed, nasty, anxious, jittery and it gets worse if I miss more than one.
The bit about 'reversing' narcolepsy symptoms. What!!!! I might not have sudden sleep attacks now but I have to sleep regularly through the day for anything from 10mins to 2 hours and if I try not to I will show sleep deprivation symptoms within the hour. [evil]
The whole thing with Narcolepsy as well is the night time sleep pattern. I will dream withing 2/5 mins of falling asleep and very rarely go past the sleep pattern into deep sleep - which is why I wake up feeling like I've been hit by a bus and probably why Fibro got a hold. Modafinil will often keep awake till 3am and I very rarely sleep more than 5 hours a night.
The amount of people who have 'advised' me to go to bed early, get a good nights sleep and then I won't sleep during the day is laughable. If only it were that easy. :(
The amount of people who have 'advised' me to go to bed early, get a good nights sleep and then I won't sleep during the day is laughable. If only it were that easy. :(
I know that one only too well! Day time sleep does not seem to stop me sleeping and it can sometimes take the edge of exhaustion. Sleep often seems a waste of time as I often wake up no less tierd and my body like a board.
Have you tried, or can you try the Carbamazepine?
Perhaps we should all draft a letter to our mp (whoever that is I have not manage to folow recent events). We should highlight the fact that the benefit system does not cater for unpredictable/ unreliable people such as our selves. What do we all think?
Now this is classic example of what happens to "me ead". I have just spent several minutes flicking round caithness.org and ebay between open browsers. I new I wanted to look for some thing and sort of new what I was after. I was actually looking for Google just couldn't quite think what it was.
Blooming frustration and a waste of life....
Pm'd a few of you but there seems to be so many sufferers out there I will post a link, my advice is to read the info on the website below, these people WILL cure you.
www.mickeltherapy.com (http://www.mickeltherapy.com)
I can vouch for the above therapy; I have a life again! It may take only a few sessions or may take much longer but it works.... it definitely works!
crustyroll
10-May-07, 17:39
Crustyroll, I have fibroids too. I wonder if this could be related? Although I don't think it's listed as a symptom?
I am sure I saw this in a list somewhere, as well as fibrous lumps in other areas of your body. Does anyone else have a lumpy body?? :lol:
Quote Stratman "I frequently can't follow conversations or read more than a paragraph with great difficulty. I get confused and think I don't know things that I do, not recognising or misunderstanding words that I words that I am fully conversant with. I also think I have recognised words that I do not know at all. As you can imagine his can lead to a lot of frustration for myself and others around me. When effected I can speak in spoonerism, malapropisms and nonsensical syllables. I know what I want to say but I just can't find it but can't stop the rubbish spewing out - I have been doing this for years but it's getting worse and I struggle to even pronounce lots of words that were never a problem before."
My vision has been playing up but I am just assuming that my prescription is possibly needing changed?? Lots of blurring and trouble focusing on things.
I haven't worked out how to do lots of quotes in an reply yet!!!
Porshiepoo - I have had pain off and on in parts of my body for at least 10 years but these last 4 or 5 years have been worse. What possibly hasn't helped is that I did damage my back and have a discectomy and maybe this has triggered it off? This last year has definately saw an increase in symptoms. Even if I felt like I could physically work again I certainly don't feel like I could mentally work again, everything seems to hard to take in and remember.
Angela - I get DLA at the lowest care component and have been getting it since 2005 when my back problem really flared up and I was off work for nearly a year. It has just been renewed at the same level. I don't claim any other benefits as we get Tax credits and my husband works. However I am beginning to wonder if I shouldn't at least find out if I need to protect my (if any) future government pension. I think I could claim Incapacity Benefit but again that would affect Tax Credits - would there be more benefit in applying for Incapacity?
As for filling in the DLA form, it took me 2 weeks :mad: Apart from not being able to think about how to fill it in, struggle with writing sensible and truthfull answers, my hands hurt like crazy and I had to keep stopping after 5 minutes of writing!!
Now this is classic example of what happens to "me ead". I have just spent several minutes flicking round caithness.org and ebay between open browsers. I new I wanted to look for some thing and sort of new what I was after. I was actually looking for Google just couldn't quite think what it was.
Blooming frustration and a waste of life....
Oh that did make me laugh, ive just done the same dam thing LOL JAN X
danc1ngwitch
10-May-07, 21:26
I just wanted to say, I will never moan again about nothing. I am sorry to hear about ppl suffering.
highlander
10-May-07, 22:31
I would like to thank you all for letting me know how this illness affects you, I found reading threw all your posts i could relate to how it affects me.
When things are at its worse like this last few days, it felt like someone was scraping a knife down my shin, calfs muscles and thigh muscles in agony, like i had ran a marathon, when i would walk i thought my ankle was about to break, i would even find it difficult to lift the kettle to make a coffee as both elbows felt like they had been whacked with a baseball bat!!
I can be sitting having a meal, and have to stop half way through meal because the tiredness will take over, but one thing i was happy to read what you all said was the gobble-de-gook that we speak LOL my husband often says "gawd woman how the heckies can anyone understand what you say" but I know what I am saying, cant help if you dont talk my language LOL
Take care friends, now we know we are not alone.
The amount of people who have 'advised' me to go to bed early, get a good nights sleep and then I won't sleep during the day is laughable. If only it were that easy. :(Porshiepoo, isn't it always the case that people who have no concept of what a particular illness involves, what causes it or how it affects sufferers are always the ones who know how easy it is to cure.
What amazes me is that all the highly trained medical experts are too stupid to discover the same simple solutions which are guaranteed to work! :roll:
Until I found myself looking at an ordinary kerb thinking "how on earth will I manage to climb up there" I didn't realise just how exhausted I was!:lol:
Until I found myself looking at an ordinary kerb thinking "how on earth will I manage to climb up there" I didn't realise just how exhausted I was!:lol:
yes, I know that one, Torvaig!
And the other one, where you have to step off the kerb...but hesitate because you feel so "fuzzy" you think you'll fall over? :roll:
I do realise that it's hard for people who haven't felt that way to have any understanding of it!
porshiepoo
11-May-07, 12:05
Until I found myself looking at an ordinary kerb thinking "how on earth will I manage to climb up there" I didn't realise just how exhausted I was!:lol:
Hahaha, at least we can laugh about it.
As for DLA, I attempted to claim last year and has to be one of the worst experiences of my life. Needless to say it was turned down. Even though my docs report and both specialist reports were in my favour.
The independan doc they sent out to me was a joke. His first comment in his report was how good my dental health was???????
The the rest of his report just carried on about how I find the energy to bicker with my husband. I tell you, this report was so hilarious I've actually kept it.
The best comment though was in response to my statement that my daughters prefer not to come out with me alone as they find it embarrassing if I sit down and fall asleep (Yep, done it loads) and this doc says that my 'eccentricity may contribute to her daughters reluctance to be seen in public with her'. Cheeky so and so. :lol:
The things this guy put in his report was just so unrelated to my illnesses.
However, in his wisdom he did claim that fibro is 'benign' and 'deterioration is generally unlikely' - such wisdom eh guys!
Good for you crustyroll! You must tell us how you get on.
I've made another (extended) appointment with my GP for when he comes back from holiday on the 22nd. I've not had any physio since I left hospital -just left with a sheet of exercises to do each day. Their main concern was that I could manage to make a cup of tea so, as they admitted, they could tick that box and get me sent home.
Meanwhile another 20 page form has today crashed through the letterbox from jobcentreplus for me to fill in...it's called a "Personal Capability Assessment". Another of these tick-the-box things where there never seems to be a box that fits YOU. :confused
It says "in particular you should tell us about any pain or tiredness..."...now where do I begin exactly?
I wonder if I could soon qualify for a degree in form-filling [lol]
Although I don't have Fibromyalgia I do empathise with you all as I have a few illnesses which have quite a lot of the symptoms you all describe.
I get the dreaded 'brain fog' and 'cotton wool brain' which is mainly why I don't take part in many posts as I can't think of the words......sorry what was I going to say again?!!!:eek:
It is bad enough having to cope with illness on a day to day basis without the added 'stigma' of being on benefits and people thinking you are okay because you look fine!
Also coming across ignorant sods such as poor Porshiepoo encountered!
Ah those dreaded forms!!!!!
A really good place to get help is Disablement Income Group Scotland who will give lots of advice and even fill in the forms for you! They told me that the main reason people don't get the benefits they are entitled to is because they don't complete the form properly.
The Citizens Advice Bureau will also help.
I have given up going to the Drs as I never seem to get anywhere and usually the side effects of the medication is as bad as the illness. Instead I use mainly 'natural' products and avoid processed food as much as possible. Have the odd treat though!
So to all of you also struggling with illness I send my sincere best wishes and hope you get the help you need and deserve.
At least you know you are not alone!
Take care.:D
porshiepoo
11-May-07, 18:59
These DLA doctors are supposed to impartial but this one definately worked in favour of the DLA.
He so contradicted himself in several areas of his report too.
I've just had another look through (I do that often) and my report has had me bits again. :lol:
Theres one paragraph about variability and this doc claims I couldn't grasp the concept so he gave up. Hahahahaha and theres one bit where the doc put 'claimant answers questions with 'ya know' "When examiner does not know at all and would much like to!" lol.
He also found it hard to believe that I could seem so alert if I have narcolepsy. In other words if I'm alert now then surely I can fight it anytime.
He says there was no signs of slurring which "she alluded to". He had obviously done no research into the effects of narcolepsy or fibro and yet he still qualified to give a ruddy opinion.
[evil]
Porshipoo
That's awful. It amazes me that the Dr. is not pulled up on the sarcastic ill educated comments. Thats me bieng sarcastic!!
I have recently has my personal assessment exam for incap. Benefit (a month and a half ago. oh the stress). I was having a great day with little symptoms and comunicated articulately my symptoms which I am sure will count against me. The Dr Morrison seemed very pleasant but I did not fell I had a cahnce to give a fool account of my case. I had previously submitted a 4 A4 pages of symptoms as a continuation sheet tom y medical formsand the interview did not gain aynything that I had not already reproted. All for 80 quid a week!
I wish you all the luck with your DLA
Hello all, Well today I'm going to confess to something .........My GP and i were having a conversation about the huge amount of pills i take a day ( i had gone to see if he could reduce the amount i took ) . After working out what was for what he said no carry on with what your taking. Well me being me i have been reducing them myself and changing the times and quantity. My neighbour who is a sister at my local hos said that tramadol and anitriptoline are a dangerous mix and shouldn't be taken together,:confused so i looked it up on Google and shes right, so as i have said Ive been juggling my pills about myself and I'm happy to report i feel much better in myself, and i don't cry EVERY day now . I'm sure the tablets were making me depressed . I haven't told my GP yet as i want to be 100% sure that what I've done has made me feel better. Will keep you posted. Jan x:D
PS after being advised to claim for incapacity benefit i did and was turned down only to be sent the same form again asking me to apply for it :confused . I am now waiting for a reply and will let you know the out come Jan x
porshiepoo
12-May-07, 07:29
Good luck Paris but I don't think you'll get it. :(
It's one more of the ways that us 'housewifes' are penalised for staying home and bringing up kids. You'll not have paid enough N.I in one of the past 3 years to qualify. Your pension should be protected to a certain extent while you're bringing up kids but unfortunately it won't help with some of the state benefits.
Good luck Paris but I don't think you'll get it.
It's one more of the ways that us 'housewifes' are penalised for staying home and bringing up kids. You'll not have paid enough N.I in one of the past 3 years to qualify. Your pension should be protected to a certain extent while you're bringing up kids but unfortunately it won't help with some of the state benefits.
You might be right there porshiepoo. :(
After a lot of hoo-ha because I'd been self-employed for the two years before becoming ill, they first of all said I wasn't entitled to IB because I'd been paying class II contributions. I had been working continuously for the past 20 years!
A few months later they decided I was entitled to IB after all!
However, when my kids were small, I spent 10 years at home looking after them and at that time women's contributions weren't protected, so my state pension, when it comes, will be tiny.
Just possibly it may be increased slightly by my late husband's contributions, as he had always worked, but I don't know. :confused
I agree that what we do bringing up kids should be valued much more by society, but this government in particular seems hell-bent on everyone being out at work, regardless of the effect on families.
Malcolmdog
13-May-07, 19:26
My father and brother both suffer with Fibro. After many years on traditional therapy- none of it with any lasting results. They decided to try Oil of Oregano and Oregamax Pills combined with an exersize program, my father quit smoking.
For my father, the Oil of Oregano, has enabled him to reduce the amount of pain pills that he needs to take. I think he is having longer periods of pain free days and his spirits are just soaring.
My brother continued smoking and his results, while there has been improvement in his condition, have not been as dramatic.
It is a daily journey.
porshiepoo
13-May-07, 21:29
You might be right there porshiepoo. :(
After a lot of hoo-ha because I'd been self-employed for the two years before becoming ill, they first of all said I wasn't entitled to IB because I'd been paying class II contributions. I had been working continuously for the past 20 years!
A few months later they decided I was entitled to IB after all!
However, when my kids were small, I spent 10 years at home looking after them and at that time women's contributions weren't protected, so my state pension, when it comes, will be tiny.
Just possibly it may be increased slightly by my late husband's contributions, as he had always worked, but I don't know.
I agree that what we do bringing up kids should be valued much more by society, but this government in particular seems hell-bent on everyone being out at work, regardless of the effect on families.
There really should be more help put in place for stay at home mums.
My husband has always been self employed, he pays class 2 and class 4 NI contributions and because he's self employed he is penalised at every turn despite the fact that he pays so much.
Although I have stayed at home to bring up the girls I've also been the one to do all the paper work / computer work for my husband. Put that on top of all the other jobs I do as a housewife and I should be earning much more than my husband. ;)
crustyroll
15-May-07, 22:01
Oh well I am going to try to claim IB as they can only say NO... I was working up until April 2006 so should have paid enough NI contributions.
I am having a bad day today though, felt okay a few days ago and got loads done in the house but started to go downhill and now I am struggling. I feel so tired and everything is such an effort :~( I ache and my neck is in quite a bit of pain, hence not replying to any posts recently.
And guess what, if you want a particular doctor in Thurso that's booked up well in advance you're stuffed!!! You want to visit the doc when your symptoms are at the worst so that they can SEE where you are in pain and how you are feeling but it never works like that. Anyway, got an appointment with a different doc tomorrow so we will see :confused
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