View Full Version : birth defects
my grand daughter was born last month with a cleath lip. we never new during her pregnancy that this was going to happen she had a normal pregnancy and everything was going ok.
what is the cause of this??
should midwifes make you more aware of things like this?
should there be a device to detect things like this?
why do members of the public stare at things like this??
this is not a major thing and is going to get sorted but for the mother of my granddaugher it was very hard and still is finding it hard now.
Do you mean Cleft Lip?
This might be of help...
http://www.clapa.com/
Ivy, I would think one of the best things you can do is try to speak to somebody in Maternity. I'm sure if you explain that you would like to know because you wish to give support to the mother to ease her worries then they will help you. It can't be something they haven't dealt with before.
The main thing is that you don't give them the impression you are looking for someone to blame or they might just be a little defensive.
At the moment I would think that the most important thing is to find ways of reassuring mum that it's not her fault because that is most probably what's going through her mind.
Hope things work out for everybody concerned.
Hello Ivy, I no full well about people staring, my 2nd grandson was born in Aug 2005 with very deformed hands. We were told its something to do with "bands" in the amniotic fluid getting caught up around extremities, there like elastic bands. I had never heard of this until he was born and ive had 4 children. Anyway hes waiting to go into Jimmy's in Leeds to have what they call a tidy up op then when hes older they will have a go at making him proper fingers.
Ivy, I would think one of the best things you can do is try to speak to somebody in Maternity. I'm sure if you explain that you would like to know because you wish to give support to the mother to ease her worries then they will help you. It can't be something they haven't dealt with before.
The main thing is that you don't give them the impression you are looking for someone to blame or they might just be a little defensive.
At the moment I would think that the most important thing is to find ways of reassuring mum that it's not her fault because that is most probably what's going through her mind.
Hope things work out for everybody concerned.
ive spoken to them but they said there job is to deliver babys. got an appointment with pead nurse next week so will go from there.. no its not that she will blame anyone from that side she would just like no what has caused it.. but i suppose you will never no.. could be millions of things
Hello Ivy, I no full well about people staring, my 2nd grandson was born in Aug 2005 with very deformed hands. We were told its something to do with "bands" in the amniotic fluid getting caught up around extremities, there like elastic bands. I had never heard of this until he was born and ive had 4 children. Anyway hes waiting to go into Jimmy's in Leeds to have what they call a tidy up op then when hes older they will have a go at making him proper fingers.
poor sod. least something is getting done about it. i suppose when i think about my grand daugther i no that in a couple years time that you will probably not evan notice about it.. did they say what actually caused it to do that?
Whitewater
08-Feb-06, 15:44
Hi Ivy, have never experienced this myself so I'm not really the person to advise. All I can say is that I used to have a student in my team at work who had the same problem as a child. Something we were talking about brought the subject up in the conversation and beleive me if it had not been for himself pointing it out to me then I would not have known.
I know it must be very difficult for you, your daughter and all the family, but with modern surgical techniques I'm sure there will hardly be trace by the time she goes to school.
All try to keep you chins up.
beetlecrusher
08-Feb-06, 15:45
There is an excellent cleft lip and palate specialist nurse at Yorkhill Hospital, Glasgow. She will answer any queries and worries you have. Sorry, don't know her name but give the hospital a call and they will put you on to her. Good luck.
beetlecrusher
08-Feb-06, 15:48
Just to add - I have worked with several children who have this repaired and it is honestly a wonder of surgery. Easily done as babies and hardly noticeable afterwards. There is also genetic counselling offered to assess likelihood of it happening again. Hope that helps.
cuddlepop
08-Feb-06, 16:05
Has anyone mentioned a congenital birth defect to you.Thats what I
was told when my daughter was born with a whole in her heart.The tragic thing for us is that she was six weeks old before they would listen to me that she was very ill.:mad: Ivy ,Iblamed myself and still do even although I no it was a quirk of nature
Talk to other mothers where you are the didtrict nurse will probably no someone who has been there before:o)
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