View Full Version : utterly devestated..
just really need to vent.. and hope you guys dont mind,
but my brothers baby is very poorly and if anyone would like to send out good thoughts and prayers i would really appreciate it.
we have just found out that ella.. born 15 may has Osteogenesis imperfecta.
two nights ago she broke her leg and then while trying to take blood yesterday the specialist broke her arm.
its heart breaking and so very hard. her and her sister have been thru so much already.. as they were both premies and spent the first few weeks of thier lives in hospital..
trying to imagine how our family is going to deal with this.
Josh (my brother) has taken a leave from his work, and so that means no money coming in.. and well it all just really sucks you know?
this is such a rare disease that there are only about 4 specialist in the states.. but thankfully one of those are based at charlotte where ella is.
this is one of those very rare unheard of things that you see on a special on tv.. not something you would ever have to think about dealing with in real life.. and for it to be
happening to a under 2mnth old baby.. just cant wrap my mind around it...
thanks for letting me vent.. and any thoughts and prayers again.. really appreciated.
Brandy
Oh goodness
Brandy *big hugs to you, your bro and his wife and a gentle feather touch to Ella.*
Its hard when its babes that are so poorly as they havent had a life yet.
Oh no still sounding like they're having a really hard time, hows her twin? thoughts with Josh and family.x
at the moment they think Evangeline is ok.. they have done a general check up on her.. as when Ella first broke her leg, social services took the other three and had them checked over in case of child abuse.
they are going to do the tests on her as well just to be safe.. but they think she is fine.
it broke my heart talking to josh yesterday when he said that social services were taking the kids.. he was with Ella i could hear her crying, they were interviewing Johanna and he said.. its ok.. they are just doing their job and im glad they are.. there are kids out there that need them. hes being so brave, and i know its killing him.
it's bound to be, can you imagine? what a shame, the older kids will be finding it pretty tough aswell. i guess all you can do is be there for Josh when he feels like venting!
Aw poor wee mite!:~(
I will remember Ella and your family in my prayers. Love and hugs. xxx
Tilly Teckel
27-Jun-11, 00:34
I don't usually pray but will say one tonight. They're in my thoughts and I hope for the best x
oldmarine
27-Jun-11, 03:18
brandy... my heart and prayers go out to you and your family. This is a heavy burden for all of you to carry to carry. The low income becomes an additional burden. I don't have the answers for you, but I do wish for a miracle. Perhaps a medical expert in their field can be found to help with this problem. God does work through people and i pray that the right ones can be found.
My thoughts and prayers go out to Ella and her family.
Also to you and your family, Brandy.
May God Bless you all and look over you at this very difficult time. XXX
Our thoughts and prayers are with your brother and family at this time also with yourself and your family. You must seem so helpless being so far away but lots of people will be praying for little Ella, keep us posted.
God blessx
aww she is so lovely i am thinking of you all,my life dose not seem so hard now i cant see my grandchild,nor my son his son as mother so selfish wont let him see his dad,now thats child abuse,poor wee bairns suffer,i hope everything goes good for you xxx
My thought are with you all, not easy dealing with a family member thats no well all you can do is support and love them which i am sure your doing allready x
Do your relatives enjoy the indignity of having their detailed, delicate, family health issues broadcast on the Internet ?
dragonfly
28-Jun-11, 20:17
Do your relatives enjoy the indignity of having their detailed, delicate, family health issues broadcast on the Internet ?
who knows, thats Brandy's call not yours. Maybe Brandy, being 1000's of miles away from her family, needs support from her friends on here and not side snipes to try and belittle her judgement to post. After all what suits one person doesn't suit another, it might not be up your street to be so open but it is Brandy's.
After all what suits one person doesn't suit another, it might not be up your street to be so open but it is Brandy's.Very true - so why did you bother chastising me for my position? You seem to be a contradiction.
Very true - so why did you bother chastising me for my position? You seem to be a contradiction.
It is simple chordie ..... go away ...... your comments are not wanted or needed on this thread. Obviously you have no empathy for the pain of others. If you have nothing nice to say then say nothing or go start another thread. [disgust]
dragonfly
28-Jun-11, 21:00
Very true - so why did you bother chastising me for my position? You seem to be a contradiction.
not sure where the contradiction is in that sentence that you have quoted? and can a person be a contradiction? anyway if its not a thread you enjoy, move on and let those who wish to support brandy do so
chordie, to answer your question.. no my family do not mind that people know about ella.. as we believe in the power of good will and prayer.. and by letting others know about it then that good will and prayer will spread. well mostly as some do not seem to share in the compassion. but ella is home at the moment, they sent her home last night.. poor wee soul.. she now has a broken arm as well.. as the specialist broke it while trying to take blood from her. they have advised that she not be dressed at all.. and only wear a nappy as its dangerous to dress her.. im going to call josh back tomorrow to see how they are getting on.. Thank God for Facebook and instant msging.. at least my brother and his wife can let me know instantly of any changes and the msg goes straight to my mobile.. (smiles) so i know whats going on day or night.
thank you everyone for all your good wishes and thoughts.. it really does mean so much to me..
Brandy
.. as we believe in the power of good will and prayer..Ah, I get the picture now.
The Music Monster
28-Jun-11, 22:52
Thoughts and prayers very much with them.
We are thinking of them too.
Do you know what cat Ella has been diagnosed with the brittle bone disorder yet?
As the poor wee mite will have it for the rest of her life, and it wont be easy for your brother and the rest of the family.
Margaret M.
29-Jun-11, 19:15
Brandy, thoughts and prayers are with you, wee Ella and her family. Thank goodness there is a specialist in their hometown.
no dadie not yet.. just that its severe.. as two dif dr. broke her leg and arm. i dont know much more than that.. they are awaiting blood work before they find out more.
saw this this morning.. just breaks my heart.. my SIL has posted several pics on facebook for us, and this is one of ella and josh. im not sure why she has a second splint on her other leg, but have asked ... poor little girl..
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